Our Story
dravet syndrome
Dravet Syndrome is a rare form of epilepsy impacting patients within one year of life. Our son, Jude, was diagnosed at 8 months after suffering several prolonged and life threatening seizures. It is through his incredible strength and the support of the community that we are able to slog through the uncertainty of this disease on a daily basis.
Today, years later, a different place is home for us now – a place of patience, a center for advocacy, and a quieter neighborhood in our hearts for acceptance. We encourage everyone here to help raise awareness for Dravet patients and also for their caregivers, who give almost everything.
about us
Danny, a Dad of two young boys with a career in web design/development, discovered from an early age he had average artistic abilities which he has mostly failed to improve on in adulthood. He enjoys golfing.
Brit is a beloved Mom with an extensive background in digital ad sales that forced her into therapy. Brit once enjoyed finding beauty in nature through photography which she foolishly abandoned. She eats an avocado a day.